It’s Ok to Feel Sick and Tired
Posted January 27, 2011on:
If you have been following the news you know that the East coast just got hit with A LOT of snow. So I am taking this wonderful snow day to up date my blog.
I am realizing really quickly, that when your child comes off the feeding tube only half of the battle is over. There is still a LONG road ahead. Trying to keep the feeding tube from coming back is tough. The Tube gives you a crutch. It allows you to to feel confident that your child is getting the nutrition they need no matter what. After the feeding tube is gone, you don’t really know if they are getting enough. You can get their weight checked and/or you can keep a log calculating daily calories all in hopes that you don’t see a dip in their weight again. Even with all of that, there will always be a sense of worry and doubt hanging over your shoulder. I don’t think that will ever go away.
Last time I wrote, I shared that I felt like I was in a rut. The battle against FTT was wearing me down BIG TIME!!!! All that worrying and doubt was getting to me. I blamed myself for my daughter’s slight weight regression. However, I finally realized that no parent is super human. We all get tired and run down. Carrying your child’s FTT/Feeding Tube situation on your shoulders is NOT AN EASY THING. It is taxing. It’s tough. It sucks!!!! There is no easy way to say it but is not a fun situation to watch your child go through what they are having to go through.
I just want to share that if you ever feel run down…sick and tired…frustrated with your FTT/Feeding Tube situation….TRUST ME…your not the only one! I have been there. Heck, I am there. It is not easy having to flick the on switch all the time and always be on top of things. What I am trying to say is that it is ok to feel tired. It is ok to feel run down. Don’t feel ashamed. Don’t blame yourself. Accept help from others. Take time to relax. Vent if you have to. Vent to me if you need to. But never give up. Keep fighting the fight.