Meet the Momma and the Malia
My name is Tianna. I live in Pennsylvania with my husband, step-son, daughter, two dogs and a cat. I moved here in 2003 after meeting my wonderful husband on vacation. We finally married last year. I love to scrapbook, video editing and traveling. I also stay at home with our 3 year old daughter Malia.
Malia was diagnosed with Failure To Thrive in June of 2009 at 2 1/2 years old. She was 21 lbs at the time and placed on a feeding tube a few months after her diagnosis. We have been living with the feeding tube and FTT ever since.
Malia has been through a lot of tests and even an endoscopy to determine why she was Failing to thrive. We were finally diagnosed by a feeding team that our daughter’s FTT was due to Feeding Difficulties and Lack of Interest in Food.
I began blogging about our experience right around the time that Malia was getting the feeding tube. When I first heard about FTT I had no clue what it was. I didn’t think my daughter had a problem with growth. Neither did anyone else around us. We all assumed she was just ment to be small. I didn’t think much of it until we were told Malia needed to have a feeding tube because she was not taking in enough nutrition on her own in order to grow correctly. I was floored. My world, suddenly, got turned up side down. Shoving a tube in my daughter’s nose and forcing food into her was not my idea of a good time…for either of us. It is safe to say that I was scared, nervous, panicking, getting anxiety and worrying. While my husband and I were deciding wether to go with the feeding tube I decided to look up some information on feeding tubes. Just to get an idea of what we are going to be going through. Most of the information I found on the net, including video, pertained to infants. What I wanted to see and read about was what feeding tubes were like with toddler aged children. I couldn’t find much of anything and it was driving me nuts. So I thought to myself, if I can’t find anything then other people can’t find anything. And if I am worried and looking for information that isn’t out there then other people are having the same problem. So I decided to put our experience out on the net so that others like me could find it and hopefully it will help them.
I hope you enjoy my FTT/Feeding Tube Blog.