MommaMalia Blog: Tales of The Feeding Tube

Posts Tagged ‘Cheer

I wanted to just send a quick post updating you on Malia’s progress. She is 6 years old now with no need for a feeding tube. She is still one of the shorter kids in her class and we still keep a close eye on her weight. Malia is now old enough to know that she has bad eating habits and that she needs to eat better. When she was 2 1/2 I remember praying for the day that she would be this old and FINALLY able to understand that she needs to eat more. That day has arrived!

Malia is a a very active child. She is an All-Star Cheerleader & dancer. I ALWAYS remind the doctor of this. (I also weigh her with her clothes on now. I used to be against weighing her with her clothes so we could get a true weight…but not anymore. She is older now…and every little bit helps, right?) It is actually quite funny. The first time I took her to the cheer gym I looked around and I saw so many super skinny girls flying high in the air (healthy skinny girls…many with six packs) and I looked at my equally as skinny daughter and I said to her, “Malia…I think we found a sport for you.” We have been at the cheer gym for two years now and she loves every minute of it. She knows she can’t cheer with a tube in her nose. I remind her of this on the days she doesn’t want to eat. Sometimes a little threat works every now and then.

My apologies that I don’t post as much as I used to. But our journey with the feeding tube has ended. THANK GOD! I think, that alone, should bring hope to a lot of people who are just starting their feeding tube journey. Especially those with children like mine that have behavioral issues. Just know that it will end!! Do the hard work. Take them to therapy like I took Malia to the FEEDING CENTER at Children’s Hospital in Philadelphia (CHOP). Feeding time may always be a struggle. Occasionally, it still is in my house. But it is NOTHING like it used to be. NOTHING LIKE IT USED TO BE. It is SO much better. If you are struggling believe me…I understand….and like I said… know that it will get better!

I will not blog very often but i will try to update on Malia as often as I can. I will definitely update her weight and things like that.

I put our story on the web because I didn’t have any information on Feeding Tubes for toddlers. I didn’t even know that FTT existed. I was a scared, confused and upset mother who’s world was spinning around. So if I was like that I knew other people out there had to be like that too. If I couldn’t find much information for myself…well I was going to give… what I knew… to others… so they could be aware of FTT and feel a little better about the whole process.

I hope my blog finds you well and helps in any way.

Here is my go to calorie booster: Pediasure Shakes (In the blue bottle) – I tell her they are sidekicks but they aren’t. (She just likes the name “Sidekicks”) The blue ones are the shakes. I use the shakes because they have more calories than the Sidekicks and they are made specifically for weight gain. Malia LOVES them and I highly recommend them. Here is their website if you want to find out more: https://pediasure.com

Malia cheering - post feeding tube. She is a happy, healthy, thriving little girl that truly enjoys life.

Malia cheering – post feeding tube. She is a happy, healthy, thriving little girl that truly enjoys life.


Malia

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